HILLSDALE—When Dennis Burke was diagnosed with ALS (amyotrophic lateral sclerosis) in June 2023, he faced not only the profound challenges posed by the disease but also the many daunting emotional and financial burdens that come with it.
Rather than yield to despair, Burke channeled his determination into action, founding the Dennis Burke Foundation for ALS to support others confronting the same struggle.
ALS, often referred to as Lou Gehrig’s Disease, is a progressive condition that affects nerve cells in the brain and spinal cord, leading to loss of muscle control. The disease’s cause is not fully understood, and there is no known cure. For many, the diagnosis is overwhelming. For Burke, it became a call to action.
With the support of his wife, Alissa, and their children, Kristian and Hannah, Burke has embraced his journey with resilience, dignity, and even humor. Together, the family has turned their challenges into a force for good, inspiring others and working to make a difference in the ALS community.
The foundation, established shortly after Burke’s diagnosis, focuses on providing assistance to families impacted by ALS, empowering those diagnosed to live purposeful lives, and raising awareness about the disease. Its impact was evident on Sept. 13, when the foundation held its first major fundraiser at the Knights of Columbus in Washington Township. The event, bolstered by contributions from local businesses, family, and friends, was a resounding success, with all proceeds supporting the foundation’s mission.
“The outpouring of support from the community has been overwhelming,” said Burke. “It’s a testament to the power of coming together for a cause that affects so many lives.”
In addition to local efforts, Burke and his wife have made significant contributions to advance ALS research. Recently, they donated $20,000 to the Eleanor and Lou Gehrig ALS Center at Columbia University Irving Medical Center, where they connected with Dr. Neil Shneider, the center’s director. The funds will support research aimed at understanding and ultimately combating the disease.
Burke has taken his commitment even further by registering as a donor for the center’s postmortem tissue collection program, helping to pave the way for future advancements in ALS studies.
“The work being done at the ALS Center is vital,” said Burke. “If my contribution can help move the needle in understanding this disease, then it’s worth every effort.”
The foundation’s efforts have also inspired heartfelt messages of support from friends and family. Kathy Barton shared, “We admire your strength and determination. We hope your good days are abundant and your support team has your back. Praying for you from a distance and look forward to seeing more about your foundation. Love to you and your family.”
Linda LaCorte Smith reflected online, “So many childhood memories in Hillsdale include you, my sweet friend. Sending so much love to you and your beautiful family. I’m keeping you close to my heart today and every day.”
Others, like Madeline Downes Henderson and Ursula Inghem, offered their thoughts and prayers, while Kathy Sparano Murray called Dennis a “f’n rockstar.”
The Tierney family’s message summed up a common sentiment: “The Tierney family loves you, Dennis Burke! We’re keeping you in our thoughts and prayers.”
Through the foundation and their personal advocacy, the Burke family has become a beacon of hope for others facing ALS. Their courage, grace, and determination have rallied friends, neighbors, and strangers to join the fight against the disease. For more information about the Dennis Burke Foundation for ALS and ways to support its mission, visit here.